The cancer causes extensive scarring of the bone marrow, leading to lowered production of platelets and increased risk of bleeding.

“I can’t make plans … I’ve lost so many friendships because I’m not reliable,” she said.

Deb describes Bhutan as one of her favourite countries she has travelled to. Source: Supplied

Fryers has a thirst for travel, recounting adventures in Iceland, Egypt, and Bhutan.

“My death journey is completely fine, spiritually, whole-heartedly, completely fine. It’s the living I find the hardest, because it’s this,” she said, pointing around her apartment.

‘Patients will benefit enormously’

“That interferes with their life, and there are complications from repeat transfusions,” Perkins said.

Professor Andrew Perkins says momelotinib was developed from research in Melbourne Source: SBS News

In December, the Therapeutic Goods Administration (TGA) approved the use of a new drug already being used in the United States and Europe.

“My hope is it’s not just going to be useful for this cancer, but also for a host of other inflammatory diseases.”

Professor Andrew Wilks received a medal to commemorate his Prime Minister’s Prize for Innovation last year. Source: SBS News

While the TGA has approved the drug for use, it’s not yet listed on the Pharmaceutical Benefits Scheme.

“It’s probably the first time in a long time that I have something in my disease to look forward to,” she said.