The final step is calling a hotline for a clinical review.

“No one knew about it, I didn’t know about it, I’m not sure if the medical staff knew about it,” Mr Massa said.

For his family, the story of Joe Massa is deja vu.

“They felt like they weren’t being listened to,” Ryan’s uncle Grant Kerlin said.

“At the end of the day, parents know what their child is feeling.”

“I’ve spoken to people who have used Ryan’s Rule in Queensland to get better care for their children over the years,” Kerlin said.

“I’ve heard even overseas they’re adopting very similar methods.”

NSW Health Minister Ryan Park is asking NSW Health to urgently review the accessibility and visibility of the existing REACH protocol in hospitals.

“Ryan’s death hasn’t gone unnoticed and his death can help other families,” Kerlin said.

Northern Beaches Hospital operates as a private-public partnership.

Mrs and Mr Massa are calling for the hospital to be transitioned into public hands.

A Northern Beaches Hospital spokesperson told 9News staff will be making QR codes available in the waiting room so parents can have greater access to information about REACH.