Demi Schweers has opened up about her ongoing fight with multiple sclerosis, addressing a recent cruel accusation that her health issues are not genuine.
In a TikTok post on Thursday, August 7, Schweers, 32, responded to the unfounded comment with a powerful message about living with an often “invisible illness.” Her post included a screenshot of the comment questioning, “What happened to Demi’s fake MS journey?” Schweers shared, “I wanted to show what enduring such vile remarks reveals about coping with such conditions.”
Schweers, an influencer known for courageously discussing her struggles with both her autoimmune disorder and polyendocrine metabolic ovarian syndrome (PMOS), disclosed that she recently received distressing news following an MRI conducted a few weeks ago.
“From 2020 until now, my MS had been stable with no new lesions,” Schweers stated in an emotional video. “Unfortunately, I recently found out there’s a new lesion, which is demoralizing news.”
Selma Blair also offered an update on her journey with multiple sclerosis, more than seven years after she first disclosed her diagnosis. In an interview with Stellar on Saturday, November 22, the 53-year-old actress expressed relief that she had been free from relapses for a “couple of years,” and conveyed gratitude that her condition remained unchanged. “This stability is incredibly important to me,” she shared, emphasizing the significance of her health not deteriorating.
As her new reality sunk in, Schweers started to get tears in her eyes.
“F***. I don’t even know what to say,” she confessed. “I just hope that insurance approves this new medication and I’m able to get stable again and everything stays the same. OK, I need to process this.”
Multiple sclerosis (MS) is a disease of the brain and spinal cord where the body’s immune system “attacks the protective cover of nerve cells,” according to Mayo Clinic. The illness can lead to scars or lesions and blocked signals from the brain can create issues with movement, vision and balance.
Demi, who shares two children with husband Tom Schweers, expanded upon her health issues in the TikTok caption, calling out the troll who claimed she was making it all up.
Demi Schweers giving MS update on TikTok. Courtesy of Demi Schweers/Instagram
“I’ve been really in my head the past few days and trying to stay as positive as possible,” she wrote, noting once again that she was diagnosed with MS in 2020.
Demi recalled that at her “worst” she couldn’t walk, lost her vision in her right eye and had “chronic fatigue and brain fog.”
The content creator explained that since 2021, she’s been “stable” and found a medication that was “working” and made her feel “good” during her back-to-back pregnancies. (Demi welcomed daughter Nora in May 2023 and son Theodore in June 2024.)
“That all changed this past Sunday. I had an MRI two and a half weeks ago and as this has become standard for me I wasn’t too worried about my results,” Demi shared. “I logged and and saw the words ‘NEW LESION: present, upper vertical cord’ & ‘T1characteristics: T1 hypointensity.’”
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She recalled feeling “upset, numb, sad, scared” and countless other emotions while trying to process the news.
Demi revealed that she later received a message from a neurologist she’d “never spoken to before,” which upped her anxiety about the new lesion.
After a few days, Demi was told she needed another MRI on her brain, cervical spine and thoracic spine but all tests are being scheduled out at least four to five months in advance.
Tom Schweers and Demi Schweers. Courtesy of Demi Schweers/Instagram
“I’m hoping that with this new finding I’m able to get in sooner,” she added. “As of right now, I don’t really know what this means for me in my health and I’m honestly a little bit scared.”
The Iris Nutrition founder noted, “The only thing I can do right now is wait to find out when my MRI will be scheduled and go from there. I’m gonna continue to live my life as normally as I can without getting in my head.”
She concluded by saying that she chose to share her story so that “someone else in their health journey feels less alone.”
“Having chronic illness and one that’s typically invisible is so difficult — but we’re in this journey together. 🧡 #multiplesclerosis #ms #update,” Demi wrote.
Christina Applegate, Selma Blair, Jamie-Lynn Sigler, Jack Osbourne and many other celebrities have opened up about dealing with multiple sclerosis, an autoimmune disease. Applegate revealed in August 2021 that she was diagnosed with the condition. “Hi friends. A few months ago, I was diagnosed with MS,” the Married … With Children alum wrote via X […]
Despite the one hater claiming Demi was “faking” her illness for years, the majority of the comments on her TikTok were full of hope and support.
“I found your page when I was diagnosed and you have been such a light in my life,” one social media user wrote in the comments section. “I call my lesions brain glitter. You just got new glitter. ✨ I hope that helps 💕.”
Another person replied, “Demi I’m so sorry to hear things have flared up again. It’s so messed up someone would comment this.”
Demi’s husband, 37, also commented on the clip, writing, “I love you.”