Emma Heming, the wife of Bruce Willis, has shared how her perspective on the holiday season has evolved as she navigates Willis’ ongoing struggle with frontotemporal dementia and aphasia.

In a heartfelt essay entitled The Holidays Look Different Now, Heming, 47, opens up about the challenges she faces while caring for her husband.

The former model, who parents two daughters, Mabel Ray, 13, and Evelyn, 11, with the 70-year-old Die Hard star, remarked, “The holidays have a way of mirroring our past selves, our current realities, and our hopes for the future.”

Heming expressed that when caring for a loved one with dementia, these reflections can be particularly poignant.

“Traditions that used to feel spontaneous now demand extensive planning,” she noted. “And moments that once simply brought joy might now be intertwined with sorrow.”

Heming, who has a skincare company called CocoBaba and a wellness organization called Make Time Wellness, said she remained hopeful that the end of the year could bring positive developments amid the adversity.

Bruce Willis’ wife Emma Heming, 47, explained how her interpretation of the holiday season has shifted amid Willis’ yearslong health battle with frontotemporal dementia and aphasia. Pictured 2017 in NYC 

Heming delved into detail about what she faces as she cares for her ailing spouse in an essay she posted to her website titled ‘The Holidays Look Different Now.’ Pictured in LA last month

‘There can still be warmth,’ Heming said. ‘There can still be joy. I’ve learned that the holidays don’t disappear when dementia enters your life. They change.’

Heming said she believed it was appropriate for people experiencing a loved one’s failing health to grieve, even if the person hasn’t died yet.

‘Grief doesn’t only belong to death,’ Heming said. ‘It belongs to change and the ambiguous loss caregivers know so well. It belongs to the realization that things won’t unfold the way they once did.

‘It belongs to the absence of routines, conversations, or roles that were once so familiar you never imagined them ending.’

Heming, who wed the Pulp Fiction actor in March of 2009, looked back on the years in which her spouse especially enjoyed holiday celebrations.

‘For me, the holidays carry memories of Bruce being at the center of it all. He loved this time of year- the energy, family time, the traditions,’ Heming said. ‘He was the pancake-maker, the get-out-in-the-snow-with-the-kids guy, the steady presence moving through the house as the day unfolded.’

Heming said that being ‘a creature of habit,’ she found ‘comfort in the routine of knowing exactly how the day would go’ – a routine erased by The Sixth Sense star’s ongoing health battle.

‘Dementia doesn’t erase those memories,’ Heming said. ‘But it does create space between then and now. And that space can ache.’

Heming, who wed the Pulp Fiction actor in March of 2009, pictured with Willis in LA in 2010

(L-R) Scout Willis, Bruce Willis, Victoria Rowell and Samuel L. Jackson pictured in 2003 at a holiday parade

Heming said that ‘grief during the holidays can show up in unexpected ways’ via common triggers.

She said, ‘It can arrive while pulling decorations out of storage, wrapping gifts or hearing a familiar song’ or ‘it can catch you off guard in the middle of a room full of people, or in the quiet moment when everyone else has gone to bed.’

Heming said she missed ‘the way he once led the holiday charge’ and is annoyed at yet another ‘reminder of how things have changed’ in the wake of his health crisis.

‘If you’re feeling that mix of grief (and yes, annoyance), you’re not doing the holidays wrong,’ she said. ‘

Heming added, ‘You’re responding honestly to a very real loss. You can miss what was and still show up for what is.’

Heming said she found ‘one of the hardest parts of the holidays as a caregiver is the pressure, both external and internal, to make everything feel “normal.”

‘We’re surrounded by images of what the holidays are supposed to look like–perfectly decorated homes, lighthearted gatherings, smiling faces captured in matching pajamas.’

She added, ‘Even when we know these images are curated, they can still create a sense of failure and extra loss when our reality doesn’t match. When dementia is part of your family, “normal” becomes a moving target.’

Heming pictured at a book signing at Carefest 2025 at the Ford Foundation Center for Social Justice on November 19 in NYC

Heming has been a caretaker for her ailing spouse amid his yearslong health battle 

Heming said that while she had hoped for ‘the holidays to remain exactly as they were,’ she’s learned ‘that flexibility isn’t giving up.’

Heming continued, ‘It’s adapting. It’s choosing compassion and reality over perfection.’

Heming reminded her followers of a few keynote lessons to keep in mind as the year winds down: ‘You’re not failing if things look different; you’re adapting.’

Heming continued: ‘You don’t owe anyone an explanation for how you choose to celebrate or not celebrate.’

She added, ‘It’s okay to simplify; less can be more; and that Grief is not a sign of ingratitude. It’s a sign of love;’ and ‘Joy doesn’t have to be loud to be real.’

It’s been nearly four years since Heming released a joint statement via Instagram with her two daughters and Willis’s ex-wife Demi Moore, 61, and daughters Rumer, 37, Scout, 34, Tallulah, 31, announcing that Willis was stepping back from acting amid his aphasia diagnosis.

In the March 30, 2022 statement, they said that Willis ‘has been experiencing some health issues and has recently been diagnosed with aphasia, which is impacting his cognitive abilities.

‘As a result of this and with much consideration Bruce is stepping away from the career that has meant so much to him. This is a really challenging time for our family and we are so appreciative of your continued love, compassion and support.’

They continued: ‘We are moving through this as a strong family unit, and wanted to bring his fans in because we know how much he means to you, as you do to him. As Bruce always says, “Live it up” and together we plan to do just that.’